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	<title>BDSRA - Dallas</title>
	<link>http://www.bdsra.leapserve.com</link>
	<description>Batten Disease Support and Research Association</description>
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		<title>2012 Hope For Batten Cure</title>
		<description><![CDATA[2012 Hope for Batten Cure 5K Run / 2 Mile Walk 1K Fun Run In Honor of McKenna and Eric Lowden Image Courtesy of Zizi and Zed Caffey Saturday, May 19th, 2012 Bachman Lake 3500 West NW Hwy. Dallas, Texas 75220 SPONSORED BY BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION (BDSRA)]]></description>
		<link>http://www.bdsra.leapserve.com/hope-for-batten-cure/2012-hope-for-batten-cure/</link>
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		<title>Registration and Packet Pickup Sites</title>
		<description><![CDATA[Registration Fees 5K Run: Pre-registration: $25.00 ($30.00 on Race Day) 2 Mile Walk: Pre-registration: $20.00 ($25.00 on Race Day) 1K Fun Run: $10.00 Online Registraton (Note: the link below will take you to the Get-Me-Registered website.)https://secure.getmeregistered.com/HopeForBattenCure Registration and Packet Pickup Sites Wednesday &#38; Thursday, May 16 &#38; 17, 10:00 a.m. to 7:00 p.m. Run-On 5400E. Mockingbird [...]]]></description>
		<link>http://www.bdsra.leapserve.com/registration-and-packet-pickup-sites/registration-and-packet-pickup-sites/</link>
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		<title>Run / Walk Information</title>
		<description><![CDATA[Saturday, May 19, 2012 Bachman Lake Trail, 3500 West NW Hwy. Dallas, Texas 75220 (NW Hwy. and Lemmon Avenue) View Google map: Here Race Day Registration &#8211; 8:00 a.m. 5 K Run &#8211; 9:00 a.m. 2 Mile Walk &#8211; 9:05 a.m. 1K Fun Run &#8211; 10:00 a.m. USATF &#8211; CERTIFIED COURSE 1st Overall Male and [...]]]></description>
		<link>http://www.bdsra.leapserve.com/run-walk-information/register-to-run-walk-2/</link>
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		<title>2010 Race Photos</title>
		<description><![CDATA[]]></description>
		<link>http://www.bdsra.leapserve.com/2010-race-photos/2010-race-photos/</link>
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		<title>Special Thanks</title>
		<description><![CDATA[  Special Thanks to: Braumiller Schulz &#38; Co. LLP for printing of race flyers. Chris Barton for his 2009 New York Marathon Fundraiser. Bill Borowski and Baylor Sports Care for providing two bicycle EMT’s. David Hartwig of DH Sports for race management. Chris Stratton and the Dallas Running Club’s Team Competition’s $1,125 donation in the [...]]]></description>
		<link>http://www.bdsra.leapserve.com/special-thanks/special-thanks/</link>
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		<title>2010 Run For Hope Sponsors</title>
		<description><![CDATA[THANK YOU to our 2010 Sponsors Gold Sponsorship ($1,500) Scott and Carol Lowden SAP (matching program) Silver Sponsorship ($500) A-1 Servomotor Repair Ron and Kathy Saunders Nancy and Scott Lowden Bronze Sponsorship ($250) Melva and Don Bush Linda and Doug Dixon Alison and Rick Kraft Carolina and Mack Lancaster Sarah and Don Templin Contact: Nancy Lowden at [...]]]></description>
		<link>http://www.bdsra.leapserve.com/2010-sponsors/2010-run-for-hope-sponsors/</link>
			</item>
	<item>
		<title>What is Batten Disease?</title>
		<description><![CDATA[Batten Disease is a rare degenerative brain disease that affects children. Children are born normal, and reach most developmental goals. BUT&#8230; when the disorder manifests itself, the children soon become blind, suffer many different types of seizures which often become extremely hard to control. They will begin to suffer cognitive decline, begining with the loss [...]]]></description>
		<link>http://www.bdsra.leapserve.com/what-is-batten-disease/what-is-batten-disease/</link>
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		<title>With Your Help There is Hope!</title>
		<description><![CDATA[For more information about Batten Disease contact the national organization at: BDSRA 166 Humphries Dr. Reynoldsburg, OH 43068 Phone: 1-800-448-4570 Web site: www.bdsra.org &#8220;A Light in a World of Darkness&#8221; I wish to thank Joni Metcalf, President of the Minnesota Chapter of BDSRA for her invaluable assistance. We also thank Carol Lowden for designing the [...]]]></description>
		<link>http://www.bdsra.leapserve.com/there-is-hope/with-your-help-there-is-hope/</link>
			</item>
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		<title>Message from Scott Lowden</title>
		<description><![CDATA[Batten Disease Batten Disease is a relatively rare genetic neurodegenerative disease that tends to strike boys and girls of Northern European ancestry. It is always fatal. Juvenile Batten shows few, if any, symptoms in the first five years; so the child begins life normally. Visual impairment, an early manifestation, begins at age six or seven. [...]]]></description>
		<link>http://www.bdsra.leapserve.com/unused-category/message-from-scott-lowden/</link>
			</item>
	<item>
		<title>A Personal Note To You…</title>
		<description><![CDATA[A personal note to you… First, I thank you for the opportunity to educate you about Batten Disease&#8211;a very rare inherited, degenerative, neurological disease which affects persons of any age, but primarily infants, toddlers and school age children. It begins unexpectedly and leads to a progressive loss of brain function eventually leading to an early [...]]]></description>
		<link>http://www.bdsra.leapserve.com/unused-category/a-personal-note-to-you%e2%80%a6/</link>
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