http://www.bdsra.leapserve.com Batten Disease Support and Research Association Thu, 08 May 2008 02:12:11 +0000 http://backend.userland.com/rss092 en Green Mountain Energy will make a donation to BDSRA - Dallas for each new customer signing up through our event. If you're considering changing energy providers here's a way you can help BDSRA and the environment. Just click on links below, be sure to enter the sales code: BDSRA Sign-up page: https://www.whitefence.com/greenmountain/?mrc=GME&ReferenceCode=COFDAL&SalesCode=BDSRA About Green Mountain Energy: http://www.greenmountainenergy.com/texas/home.shtml?ReferenceCode=COFDAL&SalesCode=BDSRA http://www.bdsra.leapserve.com/green-mountain-energy-fundraiser/green-mountain-energy-fundraiser/ Registration Fees 5 Mile Run: Pre-registration: $25.00 ($30.00 on Race Day) 2 Mile Walk: Pre-registration: $25.00 ($30.00 on Race Day) 1K Fun Run: $10.00 Online Registraton (Note: the link below will take you to the Get-Me-Registered website.) Get Me Registered Registration and Packet Pickup Sites Wednesday & Thursday, May 7 & 8 10:00 a.m. to 7:00 p.m. Run-On 5400E. Mockingbird Lane, ... http://www.bdsra.leapserve.com/registration-and-packet-pickup-sites/registration-and-packet-pickup-sites/ For more information about Batten Disease contact the national organization at: BDSRA 166 Humphries Dr., Suite #2 Reynoldsburg, OH 43068 Phone: 1-800-448-4570 Web site: www.bdsra.org "A Light in a World of Darkness" I wish to thank Joni Metcalf, President of the Minnesota Chapter of BDSRA for her invaluable assistance and for the picture used on this website, which ... http://www.bdsra.leapserve.com/there-is-hope/with-your-help-there-is-hope/ Saturday May 10th, 2008 Flag Pole Hill Pavilion 8100 Doran Circle Dallas, Texas 75238 (NW Hwy. & Buckner Blvd) View Google map: Here Race Day Registration - 8:00 a.m. 5 Mile Run - 9:00 a.m. 2 Mile Walk - 9:05 a.m. 1K Fun Run - 10:00 a.m. USATF - CERTIFIED COURSE Part of the Crosson/Dannis Series 1st Overall Male and Female 1st Overall ... http://www.bdsra.leapserve.com/run-walk-information/register-to-run-walk-2/ Batten Disease is a rare degenerative brain disease that affects children. Children are born normal, and reach most developmental goals. BUT... when the disorder manifests itself, the children soon become blind, suffer many different types of seizures which often become extremely hard to control. They will begin to suffer cognitive ... http://www.bdsra.leapserve.com/what-is-batten-disease/what-is-batten-disease/ Hope for Batten Cure 5 Mile Run / 2 Mile Walk 1K Fun Run Saturday May 10th, 2008 Flag Pole Hill Pavilion 8100 Doran Circle Dallas, Texas 75238 (NW Hwy. & Buckner Blvd) SPONSORED BY BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION (BDSRA) http://www.bdsra.leapserve.com/hope-for-batten-cure/register-to-run-walk/ First described in 1826 - more than 170 years ago - Batten Disease (Neuronal Ceroid Lipofuscinoses), thought to be one of the most common neurodegenerative diseases, remains an unsolved mystery today...a puzzling disease that assures its victims of only one consistent manifestation...early death. An inherited, degenerative neurological disease, - Batten may ... http://www.bdsra.leapserve.com/about-batten-disease/hello-world/