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	<title>BDSRA - Dallas</title>
	<link>http://www.bdsra.leapserve.com</link>
	<description>Batten Disease Support and Research Association</description>
	<lastBuildDate>Mon, 15 Mar 2010 15:41:32 +0000</lastBuildDate>
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	<item>
		<title>A Personal Note To You…</title>
		<description><![CDATA[First, I thank you for the opportunity to educate you about Batten Disease.  It is my hope and prayer that you will participate or donate to this event, which could bring hope to children with Batten Disease.
Our only grandson, Eric (age 13) was diagnosed with Batten Disease in the fall of 2004.  In [...]]]></description>
		<link>http://www.bdsra.leapserve.com/about-batten-disease/a-personal-note-to-you%e2%80%a6/</link>
			</item>
	<item>
		<title>2008 BDSRA Run Photos</title>
		<description><![CDATA[Saturday May 10th, 2008


Eric Lowden (12) with his Grandad, Scott Lowden finishing the 1K Fun Run.






Eric, Scott and Nancy Lowden after the 1K Fun Run.






Chris Phelan interviewing Eric.


SPONSORED BY
BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION (BDSRA)
]]></description>
		<link>http://www.bdsra.leapserve.com/about-batten-disease/2008-bdsra-run-photos/</link>
			</item>
	<item>
		<title>2009 Run For Hope Sponsors</title>
		<description><![CDATA[THANK YOU to our 2009 Sponsors


Silver Sponsorship ($1,200)


Scott and Carol Lowden
SAP (matching program)

Bronze Sponsorship ($500)



Stevens Entertainment, Inc.
Ron and Kathy Saunders

Contact: Nancy Lowden at 972-497-9705 or at nslowden@swbell.net to learn more about sponsorship opportunities for this event.
With Your Help, There Is Hope!
]]></description>
		<link>http://www.bdsra.leapserve.com/about-batten-disease/2009-event-sponsors/</link>
			</item>
	<item>
		<title>Kari Elisabeth Anderson</title>
		<description><![CDATA[2009 Hope for Batten Cure
5K Run / 2 Mile Walk
1K Fun Run

In Memory of Kari Elisabeth AndersonMay 25, 1988 – August 6, 2008

Saturday May 9th, 2009
Bachman Lake
3500 West NW Hwy.
Dallas, Texas 75220
(west of Lemmon Avenue)
SPONSORED BY
BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION (BDSRA)
]]></description>
		<link>http://www.bdsra.leapserve.com/about-batten-disease/kari-elisabeth-anderson/</link>
			</item>
	<item>
		<title>Registration and Packet Pickup Sites</title>
		<description><![CDATA[Registration Fees
5K Run: Pre-registration: $25.00 ($30.00 on Race Day)
2 Mile Walk: Pre-registration: $25.00 ($30.00 on Race Day)
1K Fun Run: $10.00
Online Registraton
(Note: the link below will take you to the Get-Me-Registered website.)
https://secure.getmeregistered.com/get_information.php?event_id=3231
Registration and Packet Pickup Sites
Wednesday &#38; Thursday, May 12 &#38; 13, 10:00 a.m. to 7:00 p.m.
Run-On
5400E. Mockingbird Lane, #114
Dallas, Tx, 75206
Google Map: Here
Friday, May 14, 11:00 [...]]]></description>
		<link>http://www.bdsra.leapserve.com/registration-and-packet-pickup-sites/registration-and-packet-pickup-sites/</link>
			</item>
	<item>
		<title>Run / Walk Information</title>
		<description><![CDATA[Saturday May 15, 2010
Bachman Lake Trail,
3500 West NW Hwy.
Dallas, Texas 75220
(NW Hwy. and Lemmon Avenue)
View Google map: Here
Race Day Registration &#8211; 8:00 a.m.
5 K Run &#8211; 9:00 a.m.
2 Mile Walk &#8211; 9:05 a.m.
1K Fun Run &#8211; 10:00 a.m.
USATF &#8211; CERTIFIED COURSE


1st Overall Male and Female
1st Overall Masters, Male and Female
1st, 2nd, and 3rd in age [...]]]></description>
		<link>http://www.bdsra.leapserve.com/run-walk-information/register-to-run-walk-2/</link>
			</item>
	<item>
		<title>Hope For Batten Cure</title>
		<description><![CDATA[2009 Hope for Batten Cure
5K Run / 2 Mile Walk
1K Fun Run

In Memory of Kari Anderson

Saturday May 9th, 2009
Bachman Lake
3500 West NW Hwy.
Dallas, Texas 75220
(west of Lemmon Avenue)
SPONSORED BY
BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION (BDSRA)
]]></description>
		<link>http://www.bdsra.leapserve.com/hope-for-batten-cure/register-to-run-walk/</link>
			</item>
	<item>
		<title>Green Mountain Energy Fundraiser</title>
		<description><![CDATA[Green Mountain Energy will make a donation to BDSRA &#8211; Dallas for each new customer signing up through our event.
If you&#8217;re considering changing energy providers here&#8217;s a way you can help BDSRA and the environment.
Just click on links below, be sure to enter the sales code: BDSRA
Sign-up page:
https://www.whitefence.com/greenmountain/?mrc=GME&#38;ReferenceCode=COFDAL&#38;SalesCode=BDSRA
About Green Mountain Energy:
http://www.greenmountainenergy.com/texas/home.shtml?ReferenceCode=COFDAL&#38;SalesCode=BDSRA
]]></description>
		<link>http://www.bdsra.leapserve.com/green-mountain-energy-fundraiser/green-mountain-energy-fundraiser/</link>
			</item>
	<item>
		<title>With Your Help There is Hope!</title>
		<description><![CDATA[For more information about Batten Disease
contact the national organization at:
BDSRA
166 Humphries Dr., Suite #2
Reynoldsburg, OH 43068
Phone: 1-800-448-4570
Web site: www.bdsra.org

&#8220;A Light in a World of Darkness&#8221;

I wish to thank Joni Metcalf, President of the Minnesota Chapter of BDSRA for her invaluable assistance.

We also thank Carol Lowden for designing the picture used on this website and Hope [...]]]></description>
		<link>http://www.bdsra.leapserve.com/there-is-hope/with-your-help-there-is-hope/</link>
			</item>
	<item>
		<title>What is Batten Disease?</title>
		<description><![CDATA[Batten Disease is a rare degenerative brain disease that affects children. Children are born normal, and reach most developmental goals. BUT&#8230; when the disorder manifests itself, the children soon become blind, suffer many different types of seizures which often become extremely hard to control. They will begin to suffer cognitive decline, begining with the loss [...]]]></description>
		<link>http://www.bdsra.leapserve.com/what-is-batten-disease/what-is-batten-disease/</link>
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