If you’re considering changing energy providers here’s a way you can help BDSRA and the environment.

Just click on links below, be sure to enter the sales code: BDSRA

Sign-up page:

https://www.whitefence.com/greenmountain/?mrc=GME&ReferenceCode=COFDAL&SalesCode=BDSRA

About Green Mountain Energy:

http://www.greenmountainenergy.com/texas/home.shtml?ReferenceCode=COFDAL&SalesCode=BDSRA

Online Registraton
(Note: the link below will take you to the Get-Me-Registered website.)
Get Me Registered

Registration and Packet Pickup Sites
Wednesday & Thursday, May 7 & 8
10:00 a.m. to 7:00 p.m.
Run-On
5400E. Mockingbird Lane, #114
Dallas, Tx, 75206
Google Map: Here

Friday, May 9, 11:00 a.m. to 7:00 p.m.
Lake Highlands YMCA
8920 Stults Road,
Dallas, Texas 75243
Google Map: Here

Or..

Register by Mail
You can register by mail, using this: Registration Form
Mail the completed form, and payment (before May 4^th) to:
Nancy Lowden,
2116 Cross Creek Drive,
Dallas, Tx 75243-4602

The 5 Mile Race will start at the bottom of Flagpole Hill and enter the White Rock Trail going north from West Lawther. The turn-around will be close to Fair Oaks. This mostly flat course should allow runners to record a fast time.

For more information on this event, contact:
Nancy Lowden at 972-497-9705 or at nslowden@swbell.net

With Your Help, There Is Hope!

BDSRA
166 Humphries Dr., Suite #2
Reynoldsburg, OH 43068
Phone: 1-800-448-4570
Web site: www.bdsra.org

“A Light in a World of Darkness”

I wish to thank Joni Metcalf, President of the Minnesota Chapter of BDSRA for her invaluable assistance and for the picture used on this website, which was the prize winning entry from her son’s school.

Race Day Registration - 8:00 a.m.
5 Mile Run - 9:00 a.m.
2 Mile Walk - 9:05 a.m.
1K Fun Run - 10:00 a.m.

USATF - CERTIFIED COURSE
Part of the Crosson/Dannis Series
1^st Overall Male and Female
1^st Overall Masters, Male and Female
1^st, 2^nd, and 3^rd in age Category
Customized trophies by www.khsculpture.com

One of the most difficult stages of the disease occurs when the child loses his/her speech. When that’s gone, it becomes a guessing game as to the child’s needs, pain, etc. This is followed by the loss of the abilities to eat and drink. Children will soon be fed through a tube inserted through the abdominal wall.

The disease causes death of brain cells. Death for the child happens when the brain can no longer sustain life.

Batten Disease was first identified 180 years ago. However, it has only been in the past ten years that progress has been made. Today there is a treatment trial underway, and we are hoping for two more trials to start next year.

Saturday May 10th, 2008
Flag Pole Hill Pavilion
8100 Doran Circle
Dallas, Texas 75238
(NW Hwy. & Buckner Blvd)

SPONSORED BY
BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION (BDSRA)

An inherited, degenerative neurological disease, - Batten may affect persons of any age, but primarily affects infants, toddlers and school age children, beginning unexpectedly and leading to a progressive loss of brain function that later destroys bodily functions, eventually leaving the victim totally helpless.

Whether in the case of infantile (Santavnori), late infantile (Jansky, Bielschowsky), juvenile (Batten, Spielmeyer, Sjogren), or adult type (Kuf, Parry), the early symptoms of Batten Disease are confusing ones. It strikes without warning, affecting vision and causing seizures or convulsions.

Possibly most frustrating of all is the fact that Batten Disease is rarely diagnosed immediately, often being mistaken for epilepsy or mental retardation, even schizophrenia. And once diagnosed, there is no satisfactory treatment and no cure. The clinical course of the disease includes a marked decline in cognitive function; personality and behavior changes; loss of communication and motor skills; poor circulation; decrease in muscle mass; hyperventilation; hallucinations, and, finally, deterioration to a vegetative state that ends in death.